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Watch: Nebraska boy with rare disorder rides customized bike for 1st time

By Chris Williams
Published  November 9, 2024 11:52am PST
Lifestyle
FOX TV Stations

Child with rare condition experiences joy of riding customized bike for 1st time

In September, a child with a rare genetic condition wheeled around Children’s Nebraska Hospital in Omaha on a customized bike, gifted by his physical therapist. (Credit: Children's Nebraska via Storyful)

The Brief

    • Raanan Alber, 7, with a rare disorder, received a custom bike from his therapist in Omaha.
    • Therapist Angie Pereira-Burbach arranged the bike to aid his therapy sessions.
    • Children’s Nebraska Hospital shared footage of Raanan riding it for the first time.

OMAHA, Neb. - A Nebraska boy with a rare genetic condition experienced the joy of riding after a customized bike was gifted to him by his physical therapy. 

The touching moment occurred in September at Children’s Nebraska hospital in Omaha.

The child, Raanan Albert, 7, is only the 28th person in the world diagnosed with CLTC-related disorder, a rare chromosomal deletion that results in a variety of impairments.

During his physical therapy sessions,  Raanan started to learn how to ride a bike with his physical therapist, Angie Pereira-Burbach.

Pereira-Burbach went above and beyond to find a customized bike for her patient, according to her hospital staff. 

The hospital released footage showing Raanan wheeling around in his new bike for the first time around the hospital.

The Source

  • Storyful contributed to this report. The information and video contained in this story was obtained from Children’s Nebraska hospital in Omaha. This story was reported from Los Angeles. 

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